Jan 29, 2009

Aspies, Inc Meeting Thursday 26-Feb-09 7pm

For anyone in Oklahoma City, I'll be at the Panera Bread on 7199 SE 29th St # 113 at 7pm on Thursday 26-February-2009. The phone number for the Panera is (405) 869-0550.

I'm going to be in OK City for some classes, so this is a chance to meet some parents and be an encouragement. Usually, I get the question, "Do you remember when you were [name an age]? How did you...." Happy to answer any question.

I'm not a credentialed expert, but I've lived it to a degree.

No charge, just buy something to eat and drink so Panera will be happy. I'll be wearing a dark green sweater and a black baseball cap. I might even have the sunglasses on. It depends how nervous I am.


Speaking at a Conference Near You?

You know about two years ago, I got opportunities to speak on Asperger Syndrome at some conferences and meetings. About four different times. The smallest group was about ten adults, the largest group was closer to 150.

Leading up to each event, I would get all worked up, wondering why I had agreed to this. I would try to document every word I was going to say, but toss each script. In the end I had either some well documented notes or a few scraps of paper.

As I was sitting and waiting to go on, I could feel something in me switch on: like an engine warming up. Then I would step behind the podium, and that something would click, and as if out of nowhere I would have all this stuff to say.

In the last year or so, I've been speaking quite a bit at churches. Different topic. I started to document my presentation less. I've noticed that I work best with a broad outline on paper and then some good ideas in my head. The presentation, sermon, or speech begins to do itself in my head over and over in the days leading up to the event.

When I get up to speak, the sermon, presentation or speech sort of makes itself, and I sit and watch. It's always very visual. I can see and hear what I'm talking about.

I don't know if I'm that good of a public speaker, but it's a remarkable experience. I have noticed that audience reaction to my Asperger presentations is one of enlightenment and hope. That's really cool. Honestly, there's a lot of hope in this world, we just can't see it for what it is.

I'm not scheduled at any more Asperger conferences, but I'd be happy to speak at some more.

But, the point of this blog entry is that I'm wondering if there are other Aspies that have an intuitive ability. It could be music, speaking, drawing . . . something which just sort of gushes out from an unseen place. Maybe as parents of Aspies we can benefit our children, but gently encouraging and feeding that gift, even if the gift doesn't seem to fit our expectation of something with good career prospects.

When I was five, who would have thought that my talking too much could turn into a career, at best, or at least a side job. But as a 43 year old unemployed Technical Writer, I'm sitting here thinking that writing is not my strongest skill. Speaking to and motivating groups is. I don't know how to turn that into any kind of temporary income, but I'm wiser to keep it in mind.


Jan 22, 2009

Aspie / Fibro Connection - Encore Posting

A May 2007 posting has gotten three comments (most of any posting so far). I am reposting it here with the comments, and some more of my ideas. If you have ideas, questions, thoughts about it, please post them at the comments link. Once in the comments section you are also free to respond to others comments.

I review all comments prior to them being included.

MAY 2007

Aryeh Abeles, MD and other contributing doctors have authored research recently published in the Annals of Internal Medicine. The study put forth the notion that Fibromyalgia sufferers have a lower pain threshold. Maybe it's better to say that they have a greater sensativity to everything. Maybe Fibromyalgia sufferers sensory defensive.

Having recenly been reading the book "Too Loud, Too Bright, Too Fast, Too Tight: What to Do If You Are Sensory Defensive in an Overstimulating World", I started wondering if there is a connection between the overstimulated state of our Aspie brains and the existance of chronic pain. I wonder if Aspies have more occurance of Fibromyalgia and other similar conditions? This is a very short post. Just posing the question, curious of what anyone else is thinking?


Here are the comments:

Chosenlast said...
I'm an Aspie with fibromylagia. I think the link between the two disorders is chronic stress. Over half of those with Asperger's Syndrome also suffer from stress, anxiety and depression. It's strongly suspected that the hormone imbalance caused by stress, causes neural changes that lead to fibromylagia.Since neither the cause of Asperger's, nor the cause of fibromylagia are known, its unlikely the biochemistry of the link will be worked out in my lifetime.

Susanf said...
Don't know if anyone is still following this thread. Geneticists have found problems in Asbergers with a specific molecule (SERT) whose job it is to vacuum up extra serotonin. In the variation, the SERT molecule gets turned up extra loud and doesn't respond to the bodies signals to shut back down - and vacuums away too much serotonin. This mechanism is a target for both drugs for Asberger's and Fibromyalgia - and a lot of other diseases that happen when the body gets too little serotonin in the right places. HTH.-Susan

KiKi said...
Don't know if anyone is following this, but it's interesting. I have Fibromyalgia and have been reading about autism for my work...and I have a low tolerance for noise, lights, smells, and small irritations. Very interesting.